The Centers for Disease Control and Prevention, National Center for Health Statistics provides the ICD and ICD-CM (clinical) codes for each year, plus links to the current ICD-PCS Procedure Coding System
"The Health Insurance Portability and Accountability Act (HIPAA) Privacy Rule is the first comprehensive Federal protection for the privacy of personal health information. Research organizations and researchers may or may not be covered by the HIPAA Privacy Rule. This website provides information on the Privacy Rule for the research community."
The Census Bureau collects health insurance data using three national surveys: the Current Population Survey's Annual Social and Economic Supplement (CPS ASEC), the American Community Survey (ACS) and the Survey of Income and Program Participation (SIPP). The CPS ASEC collects health insurance data on an annual basis at the national and state level geographies. The ACS collects data on an annual basis for the nation, all 50 states, the District of Columbia, Puerto Rico, every congressional district and all counties, places and metropolitan areas with populations of 65,000 or more. The SIPP collects longitudinal health insurance data at the national level of geography.
Find here background information on the ICD, including updates on revisions. The World Health Organization maintains the ICD, ICF, and ICHI codes, as its constitution mandates the production of international classifications on health so that there is a consensual, meaningful and useful framework which governments, providers, and consumers can use as a common language.
Professional Resources for Health Information Technology
AHRQ's mission is "to produce evidence to make health care safer, higher quality, more accessible, equitable, and affordable, and to work with the U.S. Department of Health and Human Services (HHS) and other partners to make sure that the evidence is understood and used."
The American Health Information Management Association (AHIMA) is "the premier association of health information management (HIM) professionals worldwide." Serving affiliated component state associations and individual members, it is "recognized as the leading source of HIM knowledge, and a respected authority for rigorous professional education and training."
The American Health Quality Association (AHQA) is "an educational, not-for-profit national membership association" (a trade association). "AHQA represents Quality Improvement Organizations (QIOs) and other professionals working to improve health care quality and patient safety."
AMIA aims to lead the way in transforming health care through trusted science, education, and the practice of informatics. AMIA connects a broad community of professionals and students interested in informatics. AMIA is the bridge for knowledge and collaboration across a continuum, from basic and applied research to the consumer and public health arenas.
"CAHIIM is an independent accrediting organization whose Mission is to serve the public interest by establishing and enforcing quality Accreditation Standards for Health Informatics and Health Information Management (HIM) educational programs."
HIMSS is a cause-based non-profit organization for individuals and corporations with the mission "Globally, lead endeavors optimizing health engagements and care outcomes through information technology."
"The HIMSS Electronic Health Record Association is a trade association of Electronic Health Record (EHR) companies, addressing national efforts to create interoperable EHRs in hospital and ambulatory care settings. "
"The Indiana Health Information Management Association (IHIMA) is a non-profit healthcare professional association representing over 2,000-credentialed Hoosiers ... IHIMA is an affiliate with American Health Information Management Association (AHIMA) as a component state association."